Myositis & Neuromuscular Diseases | Treatment and Rehabilitation
Neuromuscular rehabilitation means rehabilitation of all neuromuscular conditions. The disease comes from the peripheral nervous system and muscle. At Johns Hopkins, we have a specialized team of neuromuscular rehabilitation. Why do neuromuscular conditions need a specialized team of rehabilitation? There are a few reasons. First, most neuromuscular conditions are very rare, and not much is know about their diagnosis and treatment, not only rehabilitation. Second, a lot of neuromuscular conditions have very distinctive unique clinical features and if we don’t fully understand those clinical features it is very difficult to rehabilitate those patients with neuromuscular conditions.
And lastly, exercise is a very important tool for any rehabilitation. Now in neuromuscular diseases, nerve and muscles are already damaged so very careful rehabilitation is required to safely exercise them. (upbeat music) Currently, our team is focused on myositis and POTS. Myositis is an autoimmune inflammatory muscle disease and POTS another name is postural orthostatic tachycardia syndrome. This is a very debilitating disease of the autonomic nervous system. (upbeat music) The treatment of myositisbasically suppressing the inflammation through certain medications. More recently, scientific advances show that there are a certain type of exercises which are not only safe but can dramatically improve their muscles strength. At Johns Hopkins we use very
specific protocols to treat those myositis patients through exercise. (upbeat music) The treatment of POTS includes specific kinds of diet, hydration, and exercise. Those treatments can be very effective for POTS patients but require very comprehensive multidisciplinary care. At Johns Hopkins, we provide comprehensive rehabilitation care for POTS patients. (upbeat music) At Johns Hopkins neuromuscular rehabilitation clinic, our patients when they come into our clinic, they meet several different experts including physical, occupational, speech therapists who all specialize in neuromuscular conditions. Within one-day our patients usually go through very comprehensive and objective physical function testing. Based on those test results we can give them optimal and individualized exercise and rehabilitation programs.
(upbeat music) One of the main strengths of Johns Hopkins is scientific research. We all do cutting edge research to answer questions that are brought up inour daily clinical care. Among many different projects that I have for example, I work with the technology team and computer science people to develop a tool for exercise and rehabilitation so that the patient can follow our exercise prescription much easier and more effectively. If you have any more questions about our team function and research, please don’t hesitate to contact the department of physical medicine rehabilitation at Johns Hopkins. Thank you very much. (upbeat music)